Family Support Worker
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This vacancy has been independently reviewed by the OppaJob Transatlantic Career Intelligence Desk to confirm authentic direct employer recruiting, verify compensation transparency, and eliminate applicant processing fees.
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Position Overview & Specifications
We are looking for a dedicated, empathic and organised person to join our growing family support team here at the BDFA. This is a home-based role (anywhere in the UK) and part-time at 21 hours per week. This role is home based but will involve some travel in order to support our families who live throughout the UK as well as attending our central London office and our annual conference.
The BDFA is the only patient organisation in the UK for families affected by Batten disease, a rare and terminal neurodegenerative condition that affects children and young people.
This role as Family Support Worker will include daily contact with families and supporting their needs, logging information, providing support and training for schools and liaising with professionals such as nurses, social workers and teachers. You will work with stakeholders in social care, health and education as well as peers in the rare disease space. The successful candidate will work under the guidance of our Head of Family Support and Advocacy.
This job requires a resilient and empathic individual who has passion for supporting those in our Batten community, with the desire to reach and support our growing Batten community.
Candidate Selection & Onboarding Process
Application & Resume Screening
Submit your tailored CV/Resume directly to the talent acquisition portal.
Technical & Competency Interviews
Virtual interviews with the hiring manager and multidisciplinary team.
Formal Offer & Benefits Negotiation
Written agreement outlining compensation, equity, retirement vesting, and relocation allowances.
Onboarding & Corporate Integration
Equipment provisioning, team orientation, and commencement of duties.
United Kingdom Right to Work & Skilled Worker Visa Guide
Employment in the United Kingdom requires legal Right to Work verified under the Home Office Points-Based Immigration System:
Sponsoring employers must hold an active Home Office A-rated Sponsor License and assign a valid Certificate of Sponsorship (CoS). Role must meet the general minimum salary threshold (£38,700) or occupation going rate.
Continuous employment under Skilled Worker status establishes eligibility for Indefinite Leave to Remain (ILR) after 5 continuous years, leading to British Citizenship.
Candidate Preparation Blueprint: General
Based on transatlantic hiring benchmarks for Family Support Worker roles across The Batten Disease Family Association's corporate sector, successful applicants typically excel across three core dimensions:
Demonstrated portfolio evidence, architecture/system design case studies, or validated professional certifications directly applicable to General.
STAR method competency responses highlighting cross-functional leadership, conflict resolution, and delivering measurable enterprise ROI under tight timelines.
Total compensation expectation aligned within the benchmarked £26,000 - £27,500 bracket, including retirement vesting and health parity.
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